It has been the summer holidays, which we have JAM PACKED full of fun times, I'm sure Erin will have loads to share about what we've been up to but I just wanted to share this with you for now.
Erin got a place at the local village primary school 2 days after going back to school in September! It was very quick, we found out on the monday and she started on the tuesday!!
Today I am so utterly PROUD of Erin! She did a talk to her new class HERSELF (the teacher was going to do it) reading facts about alopecia from www.headzup.org.uk which is aimed at children AND her own personal experience that she wrote. She said she had lots of questions too that she answered. I wish I could have seen it. This is only her 3rd day at the school... She rocks!!
Well done Erin, love Mum xx
Thursday, 11 September 2014
Friday, 20 June 2014
Thank you from Erin
This is Hannah, Erin's Mum, I wanted to write something today too. Erin is a selfless, intelligent, funny, loving, medium-sized girl (she'd kill me if I said little!) She astounds me with how well she deals with her alopecia, some may say she's fortunate that most of her patches are well hidden but she doesn't ignore them. Every now and then she'll ask me to take photos so she can see it, because in most part they are at the back where she cannot see in the mirror. Her hair is still constantly falling out, the patches are merging into areas and we understand that one day it might all just go... it might not either, that's the thing with alopecia, who knows what will happen!
As you can see she's lost a substantial amount over the last 7 months. Some bits seem to have grown again but overall the patch has grown.
Yesterday in the hairdressers she was looking through the colour chart, you know the ones with curls of hair in different colours picking out what colour she'd have if she did go bald (or almost bald) for a wig... she picked a sandy blonde for school and then red and purple for when she's a famous drummer!! This is totally unprompted. She understands we have no control and happily talks about options for different situations. I have told her that if she does lose the majority of her barnet that I will shave mine too for charity!
Erin gets so much from this blog because it shows how much other people care about her and of course it's nice to think that other children with alopecia could read this too. If you go back to when she first found out, the progression of her dealing with alopecia has been positive and quick for a girl of just 8 years old. I'm very proud of her. What neither of us expected was how much people have reached out to show their love, some even send her presents! She's not expecting anything from anyone and has never been a spoilt child so she truly loves everything from words to hats that comes her way. We are both genuinely really touched by everyone's support.
Here is a video we put together last night...
With thanks to Laura from Tea & Honey Bee's Design for the little monsters
As you can see she's lost a substantial amount over the last 7 months. Some bits seem to have grown again but overall the patch has grown.
Yesterday in the hairdressers she was looking through the colour chart, you know the ones with curls of hair in different colours picking out what colour she'd have if she did go bald (or almost bald) for a wig... she picked a sandy blonde for school and then red and purple for when she's a famous drummer!! This is totally unprompted. She understands we have no control and happily talks about options for different situations. I have told her that if she does lose the majority of her barnet that I will shave mine too for charity!
Erin gets so much from this blog because it shows how much other people care about her and of course it's nice to think that other children with alopecia could read this too. If you go back to when she first found out, the progression of her dealing with alopecia has been positive and quick for a girl of just 8 years old. I'm very proud of her. What neither of us expected was how much people have reached out to show their love, some even send her presents! She's not expecting anything from anyone and has never been a spoilt child so she truly loves everything from words to hats that comes her way. We are both genuinely really touched by everyone's support.
Here is a video we put together last night...
With thanks to Laura from Tea & Honey Bee's Design for the little monsters
Friday, 30 May 2014
Rocco And Luna,
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| Me & Rocco |
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| Rocco |
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| Me & Luna |
Friday, 28 March 2014
Drumming
My Drumming is so epic because I practice every day but only do it for 10 or 15 minutes a day. I do drum lessons every Saturday at 4 o'clock (in the afternoon). I do drum lessons because I want to be a drummer and I'm just interested in drumming.
Drumming is sort of weird and sort of fun because basically you are just crashing the cymbals and bashing the drums that's the weird and fun part. You use energy by playing on a drum set.
When my Dad came home today he brought a new drum set, it was a surprise. I saw him come through the door with a new snare and cymbal and thought it was just those but it is a whole set! On my drum set there are 3 tom toms, 1 snare, 1 bass, 1 high hat (cymbals) and 1 crash (cymbal). I was speechless and excited to play it.
Drumming is sort of weird and sort of fun because basically you are just crashing the cymbals and bashing the drums that's the weird and fun part. You use energy by playing on a drum set.
When my Dad came home today he brought a new drum set, it was a surprise. I saw him come through the door with a new snare and cymbal and thought it was just those but it is a whole set! On my drum set there are 3 tom toms, 1 snare, 1 bass, 1 high hat (cymbals) and 1 crash (cymbal). I was speechless and excited to play it.
Thursday, 27 February 2014
Be Bold Be You Children's Awards
On Friday 21st I
went to my awesome awards, it was soooo EPIC!
Before the awards I was
excited and worried, I was excited because
I have been waiting for ages
and I was worried because I thought
My Friends
I made a friend called Eleanor, we went in the
photo-booth
7 times together! In 1of the
photos Sophie (Eleanor’s sister)
is in it because Sophie jumped in on the 2nd
photo of
At The Award Ceremony
When they
were giving out the awards they finally got to
me and said :“She made a blog for alopecia
kids and we
look at it…………..ERIN WALKER !”and that is how
I got
my award. I felt weird and happy
because I was proud but it was a bit embarrassing going to the front
in front of all the people. When I look at my award it makes me smile.Tuesday, 18 February 2014
Drums & Dogs
We went to Wales to get a new puppy, we called her Luna, she is black and white and cute. It took 4.5 hours to get there and 4.5 hours to get back, so all together 9 hours! So I missed my first drum club lesson but we had to pick her up that day because we rescued her. Luna is crazy, a chewer, funny, a cutie pie and a tiny bit clever, I love her.
This weekend I had my first ever drum lesson and it was funny because the drum teacher was in and out of the room that I was in. He was in and out because the other boy learning drums was in the room next door. I played on a drum kit with 5 drums (1 base, 1 snare, 3 tom toms) and 5 cymbals, it was weird because I'm not used to a massive drum kit!
There are only 3 sleeps until the awards and I'm so excited!! I can't wait to meet other alopecia kids.
My alopecia is growing back in some places and falling out in others. You can see in this picture where my hair is growing again
And this one I've got some regrowth and some new patches! Alopecia is a funny old thing.
This weekend I had my first ever drum lesson and it was funny because the drum teacher was in and out of the room that I was in. He was in and out because the other boy learning drums was in the room next door. I played on a drum kit with 5 drums (1 base, 1 snare, 3 tom toms) and 5 cymbals, it was weird because I'm not used to a massive drum kit!
There are only 3 sleeps until the awards and I'm so excited!! I can't wait to meet other alopecia kids.
My alopecia is growing back in some places and falling out in others. You can see in this picture where my hair is growing again
And this one I've got some regrowth and some new patches! Alopecia is a funny old thing.
Wednesday, 5 February 2014
Erin Wolf
Today when I got back from school I saw that there was post for me and it was a WOLF HAT! The lady that made Steve my minion hat from my pen pal said she would make me a hat for free after she saw my blog. She said I could have anything I wanted in any colour. I chose a wolf because I like deadly stuff like werewolves and pretend to be a wolf with Freya.
When it was in the bag I thought it was a granny's wig because it was a bag with grey and black in it BUT i took it out and it was a wolf hat. I screamed and jumped up and down and hugged my mum and brother. My two first favourite hats are now Steve and my new Wolf hat!
I absolutely love it.
Also when I was getting ready for Mum to take photos we noticed I have one bald arm and one hairy arm, it's quite funny!
For amazing made to order hats speak to Tamzin @ Meopham's Little Minions
When it was in the bag I thought it was a granny's wig because it was a bag with grey and black in it BUT i took it out and it was a wolf hat. I screamed and jumped up and down and hugged my mum and brother. My two first favourite hats are now Steve and my new Wolf hat!
I absolutely love it.
Also when I was getting ready for Mum to take photos we noticed I have one bald arm and one hairy arm, it's quite funny!
For amazing made to order hats speak to Tamzin @ Meopham's Little Minions
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