Thursday, 23 April 2015
Monday, 20 April 2015
Easter Holidays
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| Irchester Country Park |
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| Me on the pirate ship! |
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| Just getting off the pirate ship with my dad |
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| Driving the dodgem car with my brother |
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| The big rollercoaster (I'm on there!) |
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| It's almost completely gone at the back, my left side and now down my parting too. |
We sat in a waiting room when we got there, I was half nervous and half excited. I was nervous because I don't know who on earth he is and I was excited because I might get a human hair wig, this makes me happy, it will be nice not to worry about my bald patches. The man was really nice and a chatterbox a bit like me! He showed me different styles of wigs. I got to brush them and it is good because it doesn't hurt my head!! We're going back in a couple of weeks to try some out in my size and colour.
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| Sywell Country Park |
Thursday, 26 March 2015
Hair loss & Wigs
After my bath one night Mum noticed more hair than usual stuck to my shoulders and arms. She had a look at my hair and found more bald patches. They were at the sides and at the top, I was upset because it's spreading and going to more places (not just the back!). One of my eyebrows is getting really thin too.
Mum talked to me about it and about that maybe if more falls out we might have to get a wig. She said I didn't have to wear one, I might like to just cut it all off. She showed me photos of girls with shaved heads and we looked at wigs on the internet.
I actually got excited looking at the wigs! We also visited a friend called Amy with alopecia, she wears wigs all the time except at home. I got to look at her wigs and try them on. Amy gave me a wig she doesn't wear to have a play with at home and get used to having a wig around. I was really surprised that she was wearing wigs because you couldn't even tell!!
Since this I've also had to stop eating CHOCOLATE! it has been making me sick, the doctor says I have a periodic syndrome called cyclical vomiting. I was gutted as it's so close to Easter. Mum bought me a purple wig to cheer me up. I LOVE IT!!! It's my rock-chick-chicky-rock wig for at home. Purple is my favourite colour and I've said right since I had alopecia I wanted a purple wig!!
If all my hair does fall out, I will get a proper human hair wig but wear my purple one for parties and whenever (except at school!).
So even though I am scared about maybe being bald, I am excited about how much fun and how many hairstyles I'll be able to have with wigs.
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| these were taken at the beginning of March they are bigger now |
Mum talked to me about it and about that maybe if more falls out we might have to get a wig. She said I didn't have to wear one, I might like to just cut it all off. She showed me photos of girls with shaved heads and we looked at wigs on the internet.
I actually got excited looking at the wigs! We also visited a friend called Amy with alopecia, she wears wigs all the time except at home. I got to look at her wigs and try them on. Amy gave me a wig she doesn't wear to have a play with at home and get used to having a wig around. I was really surprised that she was wearing wigs because you couldn't even tell!!
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| The wig Amy gave me |
If all my hair does fall out, I will get a proper human hair wig but wear my purple one for parties and whenever (except at school!).
So even though I am scared about maybe being bald, I am excited about how much fun and how many hairstyles I'll be able to have with wigs.
Saturday, 21 February 2015
New Hair!
A few months ago I had a bit of hair growing back we found out because I always ask if mum can take a picture of my bald patch because I can't see it plus it's round the back.
Sometimes the patch gets bigger but sometimes a bit grows back. Although my patch has got bigger, my new hair is getting longer. It's exciting that my hair is growing back a bit. The really annoying bit is that even though it is growing it's still confusing because I don't know how much it will grow. My family are happy too.
It looks like a big mexican moustache!!
Sometimes the patch gets bigger but sometimes a bit grows back. Although my patch has got bigger, my new hair is getting longer. It's exciting that my hair is growing back a bit. The really annoying bit is that even though it is growing it's still confusing because I don't know how much it will grow. My family are happy too.
It looks like a big mexican moustache!!
It's good to have fun with your alopecia!
Thursday, 4 December 2014
Alopecia Friends & Cadbury World
Before the half term I told mum that I was feeling lonely about my alopecia. I haven't met many other people that have got alopecia since the awards. It makes me more confident seeing other people with alopecia because seeing how they feel about their alopecia I know I'm not the only one.
Mum arranged for me to meet up with Eleanor who I made good friends with at the awards but they live quite far away so we all met in Birmingham and stayed over the night too. We all went to dinner at Nando's. I was really cheerful when I saw Eleanor, she gave me a massive hug! After dinner Eleanor took me to the bathroom to take her wig off and show me that she has some new hair, I was really happy for her. Then I put on her wig and she put on my hat and we went back to the table laughing our heads off to show everyone.
The next day we went to Cadbury World, we got loads of free chocolate all the way around. We learnt the history of chocolate. We saw people making chocolate and delivering it then we played in the play ground.
It was really good to see Eleanor and I really can't wait for Alopecia Camp next summer with BeBold
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| Eleanor & Erin |
Mum arranged for me to meet up with Eleanor who I made good friends with at the awards but they live quite far away so we all met in Birmingham and stayed over the night too. We all went to dinner at Nando's. I was really cheerful when I saw Eleanor, she gave me a massive hug! After dinner Eleanor took me to the bathroom to take her wig off and show me that she has some new hair, I was really happy for her. Then I put on her wig and she put on my hat and we went back to the table laughing our heads off to show everyone.
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| Crazy Kids |
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| Swap! |
The next day we went to Cadbury World, we got loads of free chocolate all the way around. We learnt the history of chocolate. We saw people making chocolate and delivering it then we played in the play ground.
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| Cadbury's Drumming Gorilla |
Sunday, 28 September 2014
Alopecia Awareness Month
September is alopecia awareness month and Alopecia UK are asking you to "Give AUK a Hand" by donating to their charity! Text HAND83 £5 to 70070 or donate online https://www.justgiving.com/auk/
THANK YOU!
Thursday, 11 September 2014
New School
It has been the summer holidays, which we have JAM PACKED full of fun times, I'm sure Erin will have loads to share about what we've been up to but I just wanted to share this with you for now.
Erin got a place at the local village primary school 2 days after going back to school in September! It was very quick, we found out on the monday and she started on the tuesday!!
Today I am so utterly PROUD of Erin! She did a talk to her new class HERSELF (the teacher was going to do it) reading facts about alopecia from www.headzup.org.uk which is aimed at children AND her own personal experience that she wrote. She said she had lots of questions too that she answered. I wish I could have seen it. This is only her 3rd day at the school... She rocks!!
Well done Erin, love Mum xx
Erin got a place at the local village primary school 2 days after going back to school in September! It was very quick, we found out on the monday and she started on the tuesday!!
Today I am so utterly PROUD of Erin! She did a talk to her new class HERSELF (the teacher was going to do it) reading facts about alopecia from www.headzup.org.uk which is aimed at children AND her own personal experience that she wrote. She said she had lots of questions too that she answered. I wish I could have seen it. This is only her 3rd day at the school... She rocks!!
Well done Erin, love Mum xx
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